My Diagnosis

Discussion in 'Health & Wellness' started by Hedi Mitchell, Mar 13, 2020.

  1. Beth Gallagher

    Beth Gallagher Supreme Member
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    It's now 12:54 a.m. CST
     
    #91
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  2. Patsy Faye

    Patsy Faye Supreme Member
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    You could try a lullaby Beth - 'golden slumbers' is the one I sing in me head, don't want to wake me darlin'
    I know he'd say 'enough already with the golden slumbers' :oops::p

    @Beth Gallagher
     
    #92
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  3. Beth Gallagher

    Beth Gallagher Supreme Member
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    Good one, Patsy.

     
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  4. Hedi Mitchell

    Hedi Mitchell Supreme Member
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    #94
  5. Lois Winters

    Lois Winters Veteran Member
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    The night before last, was one of my up all night jobs. I tried reading, to no avail. I petted the dog until she got up and moved as I was disturbing her sleep. So, yesterday, I slept all day long and slept well last night as well. Can't do these all nighters anymore.
     
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  6. Hedi Mitchell

    Hedi Mitchell Supreme Member
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    I'm glad you got some sleep. Lois u I slept pretty good myself last night.
     
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  7. Lois Winters

    Lois Winters Veteran Member
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    Believe it or not, I am ready for a nap now. Of course it extremely hot and we are looking at more thunderstorms for this afternoon, so I'll grab some z's while that's going on.
     
    #97
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  8. Hedi Mitchell

    Hedi Mitchell Supreme Member
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    Saw heart doctor this week, did Ekg , was good. He took me off two meds but added 20 mg of Lipator because of cholesterol . Lolol because it's been much higher than he knows, and dobubt will help me since I am blocked up like a dam.
    Go back in months unless problems.
    After three years had eye exam today. Because of the Predisone I am on catracts are worse and will continue to worsen . She said don't spend alot of money on glasses as your eyes will only worsen. Least she is honest I like that .
    Said I might need surgery in three years.
    I told her if :)by chance I was even here in three years..we will talk then.
    Still fighting the hands and arms, but the braces do help. Just found by accident on FB a group that have the same disease as myself..their info could be helpful.
    Oher wise I am still doing pretty good for an ole hefer;)
     
    #98
  9. Lois Winters

    Lois Winters Veteran Member
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    Gloria, do they really think it will take another 3 yrs. for this cataracts to come to full bloom? Mine moved along lickety split. But, we're all different of course.
     
    #99
  10. Hedi Mitchell

    Hedi Mitchell Supreme Member
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    She was just guessing. Said because of the medicine could be faster.
    Doesn't matter really, just going to enjoy myself best as possible, while I can.;)
     
    #100
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  11. Hedi Mitchell

    Hedi Mitchell Supreme Member
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    Have been laying low last few days.BP went crazy so doctor had me double up on meds. Not happy about it but no choice.
    I think one reason it runs high is the pressure this disease puts on my hands arms. My veins bulge up even..
    Anyway is scary at times
    When I go next Thursday to see Rhumy. doctor I have many questions.
    Like why isn't the increased dosage helping yet? The increase has kept me from sleeping, have loss of taste etc etc.
    Was over whelmined the other day and lost it ..I said the GD word and thru a fit! Who does that at this age? Was not me at all. Anyways I am better or will be once BP is better.;)
     
    #101
  12. Yvonne Smith

    Yvonne Smith Senior Staff
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    It is always frustrating when the treatment does not seem to be helping, or there is nothing more they can do. Sending you hugs and prayers for recovery, and peace in dealing with this health issue.

    6758EF61-69AA-4C4B-A583-CB6979316A91.jpeg
     
    #102
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  13. Beth Gallagher

    Beth Gallagher Supreme Member
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    Sorry you are having a bad time of it, Gloria. I know how frustrated you must feel. Hang in there and hopefully your rheumatologist will be able to help.
     
    #103
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  14. Patsy Faye

    Patsy Faye Supreme Member
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    So sad to hear this Gloria, thought things were looking much better
    Positive thoughts coming your way and for a good result on Thursday xx
     
    #104
  15. Hedi Mitchell

    Hedi Mitchell Supreme Member
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    Thank you all for concern. I am not looking for sympathy just informing of my journey with this disease.
    Like all medicine, it may take away many things but also contributes too many more. I now have thrush in my mouth, part of the reason no real food taste.:(
    And moon face.I consider myself very blessed even with all that I am going through- I am better off than many on this forum and try to remember that daily.
    I am cutting my dose to 50 MG on the Presidone(may misspell this)
    At least until next week when I see doctor.
    In hope it helps some. Think just to strong.
    I refuse to take more than 60 mg...as it has not helped the hands or arms in 60 days or more. Yet within days if taking 40 I was all but healed of the other issues.
    We will see what happens ;)
     
    #105

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