I don't know what I'm gonna do. They yanked the catheter and I barely passed the retention test. I am surprised, because my retention level has been at 400ml-450ml. The nurse only put maybe 300ml into me, and I passed 125ml (minimum to let me go home without a catheter.) The problem is that I am supposed to let them know by 2PM if I have not urinated again...I have not yet. I can not. If I haven't gone by then, I return this afternoon to have another catheter put in. I'm still in pain from having the first one yanked this morning. I don't know what's causing the problem. I had a PSA done in November and it was where it always is...0.49, which is very low. But there are aggressive prostate cancers that accompany low PSA readings, and those are real pernicious. And either way, I still have shot bladder muscles that are gonna require perpetual cathing...there's no cure for that. I floated the idea of having the suprapubic catheter done, and the nurse said that involves lots of the retention tests, presumably with the cath out/cath in over & over & over with each one. great
Oh my John so sorry to hera this. Seems there should be something you can do. I'm sure everyone here is rooting for you as I am. I'll check the Asian sites and see what they come up with on this.
John is a transplant possible in your case? Not trying to pester, you just I'm a firm believer in researching and remedy.
Aw man. I know how distressing this is for you, John and I wish there was an easy solution. I know that you dread the caths but sometimes we just get pushed back into the corner and there's just no other way out. As much as I'd dread it, I'd probably go the route of learning to self-cath and try to be OK with it. As our bodies age we just have to deal with more unpleasant realities it seems.
Sometimes there is no alternative but other times there is. I looked and came up with a couple new procedures, not sure they are worth the it but if it were me, I'd at least see what my options were. Or if I had options. Found this at Mayo Clinic, Beth what do you think of Mayo? https://www.bing.com/ck/a?!&&p=b8aa...uc3RydWN0aW9uL2Fib3V0L3BhYy0yMDM4NTA2Ng&ntb=1
Oh, God! I am so sorry, but still hopeful that something will work itself out. That very thing that you are going through is what I fear might be in my future. I do understand about the catheter. It's not a simple matter of distaste. It's painful. It's very painful, but there may be no other choice. I'm still hoping, though.
As far as I know, Mayo is a top-notch medical facility. I know that John has been doing his own research about his issue for quite a while now; not sure if he needs a "replacement" bladder because his issue is the muscles that control it. I just know how miserable it feels to have a full bladder; I wouldn't be able to live like that all the time so I'd be learning how to do some things for myself. But that's me and I'm not John so his decisions will be his own. I know he appreciates your looking for possible solutions, Marie. That's sweet of you.
Thanks' Beth but I did edit some of my reply, I realized this isn't about me.. I have to watch myself.
No problem with sharing your own concerns, Marie. I certainly over-shared my medical condition in the past couple of years.
Thanks, everyone. I vacillate between throw in the towel and letting them shove more crap up inside of me. I'm on my way back there (an hour drive) to have them shove more crap inside of me. I got no idea what the issue is. I at least need to see if it's major or minor.