This is the first time I've even this this thread @Holly Saunders and I hope you will give an update too. Are you still having that pain behind your eye? If you are and that hasn't been checked out further, then in my opinion it needs to be. My ex had a tumor behind one of his eyes and it started out with pain behind the eye as it grew and put pressure on the eyeball...it also caused memory problems as it pressed on parts of his brain that had something to do with memory. There has been some wonderful information shared by others through these posts to you...information that may help all of us down the line. I hate it that you can't see the Doctor right away when you need to, or see Specialists until YOUR Doctor decides you need to. I wish y'all had better medical care over there because I know something like you're experiencing needs answers before you can stress less about it. I hope you will be able to update us with some good news Holly. And I want you to know that now I'll be keeping you in prayer on these matters.
@Holly Saunders, I would like to apologize for being so insensitive and seemingly uncaring regarding your memory condition. Instead of being sympathetic and caring, I chose to ramble on about how MY memory is excellent regarding complex scientific matters which are probably trivial and boring to most of the forum members. I would now like to join Gloria, Martin, Yvonne, Chrissy, Ken, Michelle, Bobby, Shirley, Jim, Don, and Babs in hoping you find at least some relief from your problem. Hal
Thank you Hal....that's very considerate of you. Everyone has been very helpful and caring about this topic, and I feel that it's a topic that should be aired for everyone to read on a senior forum However I can't give any updates apart from to say that I'm STILL waiting for an appointment to see a neurologist at one of only 2 London Hospitals which deal in this type of affliction. I have been warned it could take up to 6 months!! So for now, there are no further updates... In answer to you comment @Jim Nash , I have to say this isn't something like forgetting where I put my keys or going upstairs and forgetting what I went up for..these are things I started with , but things got steadily worse. I may seem to be ok on here because I can take time to check facts before I post ( fortunately I keep a daily journal and I photograph just about everything) this is quite a bit more serious, and affects me in that I find it difficult to hold a proper conversation face to face because the words just won't come to me...simple every day words, words I've used all my life , to the extent that I can see the look on people's faces when I can't string a whole sentence together simply because I can't think of events or the words to explain. ..My memory is shot . There's so many instances of memory loss that my doctor referred me to the above specialist hospital...and as you know as a Brit Jim, , the GP's here don't do that lightly, and certainly not mine who will write out a prescription for paracetamol for someone with a broken leg. Anyway, for now, I can't give anyone more info until I see the specialist ..but I thank you all for your concern!! xx
Have they checked you for MS, @Holly Saunders ? My daughter has that, and one of the main problems she has is with her memory. She has to do just about the same things that you mentioned, plus there is the physical pain as well. She actually had it for several years before they did the MRI at the correct angle to be able to tell that MS was the problem that she had, and before they were able to detect it, they were trying to just treat the physical symptoms, and not address the whole issue.
yes they have Yvonne...I had an MRI about 6 weeks ago ( could be longer or shorter , but recently anyway)...they specifically checked for that because my elder brother has MS... and I'm Scottish which is a known High risk too...
You see there I go again...I said in my last post my GP referred me to the London hospital neurologist ...and it wasn't my GP, it was the consultant at the hospital where I had my MRI scan... also had a CT scan too... Only when you asked about the MRI Yvonne, did it jolt my memory that in fact i'd had the MRI scan and Cat scan at the general hospital..
@ Holly Saunders You know my sister has Primary Progressive Aphasia and she is losing her words, and understanding of them. I posted a thread about her disease on here. I sure hope you don't have something like that. Having to wait six more months to see a Specialist is terrible Holly...I pray a miracle happens and that Specialist can see you sooner and I pray that the Specialist can give you answers and help with whatever is going on with you.
Babs, I remembered you'd spoken about your sisters' debilitating condition, but until now it hadn't sunk in what it was...I've now looked up the condition, and at risk of scaring myself to death much of the symptoms apply to me.. not to say that this is the problem, but it's wise for me to print this out and take it with me when I see my doctor. Thank you for that, and I'm so sorry for your sister...
it is good that they are checking, but one test might not find it. It was several years of tests before they found Robin’s MS, and it was degenerating her all of that time before they finally took an MRI that showed it. There is some good information on treating MS with diet, and you might. Want to check that, just in case you have it and they haven’t had it show up on the tests yet.
I can't put a like on this Holly and I hope that isn't your problem...but I recognized some of what my sister is going through in what you said and felt I had to share that with you.
That's a good idea Yvonne. My brother's MS took almost 7 years to diagnose but that was back in the 70's so I just presumed that when they told me that they'd checked for MS (among other things) with the MRI scan, I believed that now, unlike in the 70's, they were able to determine with just one scan... I'll make sure and get that clarified once I get to see the Neurologist!!
Holly dear----Make appointment with a doctor and tell him exactly what you have shared with us. He will run a CBC on you and probably do some other testing, but don't delay and stop worrying until you receive a diagnosis. There are drugs that can DELAY but not cure Dementia & Alzheimers.
It's completely appreciated Babs, because I would never have known about it to be able to look up the symptoms, and now feel I need to speak to my consultant about the possibility..unless you'd spoken about it.
I already have seen the doctor Lon, and several consultants over several months and had MRI and CT scans, at the general hospital. They've now referred me to one of the only 2 hospitals in London which deal with this type of neurology, but there's up to a 6 month wait for an appointment!!...however I will be printing all of your comments, and I'll keep them in my hospital folder to show the consultant when I eventually get the appointment!