@Gloria Mitchell Seems you are on the right track. I'm not familiar with this and its a nuisance that there are different forms So, you need to get that right with the Doc - hope its not too long now xx (you could look for a forum on the condition, may learn something on treatments)
This is a great idea ! When i found out that I was going to need a pacemaker, I not only researched as much as possible online, but I also joined a pacemaker forum, and several facebook groups about the procedure. Having conversations with other people who are going through the same thing in life is a great help, and you can share experiences and ask questions about what worked for other people.
So right Yvonne - there are so many forums for particular ailments, I learnt about an alternative treatment that does help and also to have mutual support. @Yvonne Smith
Actually I feel better overall. My haircut yesterday made me feel like new woman! I was looking really bad. So glad your back!
I'm so glad to hear it, Gloria. And a new haircut... girl, that had to be a pick-me-up. Take good care of yourself, my friend.
Good to read, Gloria. I am really interested in your case from a professional point of view as well. I must say scleroderma never crossed my mind. Let's hope and pray you finally get definitive answer.
After visit with rheumatologist today he thinks it this https://www.merckmanuals.com/home/b...s-of-connective-tissue/eosinophilic-fasciitis Makes sense . Lots of blood taken results tomorrow. Somewhat relieved knowing this may be it instead of Scalderma. More later on all of this.
I'm glad you are getting follow-up with a rheumatologist, Gloria. I really hope you don't have that eosinophilic-faciitis; that sounds like pretty scary stuff! I hope you are feeling better.
Listen up folks...this blew me away. In my previous post I let you know what diagnose was of my condition. Doctor said either viral or bacterial- or due to injury. Blood work is back and not viral or bacterial . Mine is injury related at this point. Back around August thru Oct was using a bicycle that was my father in laws. 10-15mintues once a day on my legs. But then decided to go cardio on arms. Slow and same amount of time.My arms began to hurt so stopped. Appartantly I injured myself really bad.Slowly the inflamation began to grow an attack my tissues. From neck to upper torso have not been able to function much and alot of pain. This all started taking place just as doctor as changing meds dosage. There are similarities between what I do have and the Scalderma we thought I had. This at least is not life threatening that I know of. I start a steroid today that should help with all my alminents. Thank you all for caring and asking about all this and keeping up my spirits Sooo from now on the only exercises I will do is remote control hunt and find !
Yep, we're not all cut out for exercise, we must listen to our body and if it hurts - stop I find stretching has been the most beneficial for me So pleased you are now in a better place Gloria x @Gloria Mitchell
This medicine is a miracle worker. I have no felt this good in a year. I have felt like and done more in this last week than the past 7 months with this disease. My arms and hands are still affected but they are some better . Like a whole new lease on life. I am wondering what will happen once taken off the medicine. Wil go see the doctor again on Wednesday. Anyway just wanted you all to know am much better and am glad to be back among living.