My Diagnosis

It's now 12:54 a.m. CST

 

You could try a lullaby Beth - 'golden slumbers' is the one I sing in me head, don't want to wake me darlin'
I know he'd say 'enough already with the golden slumbers'
@Beth Gallagher

 

Good one, Patsy.

 

@Thomas Stearn ... where is under the bridge?

 

The night before last, was one of my up all night jobs. I tried reading, to no avail. I petted the dog until she got up and moved as I was disturbing her sleep. So, yesterday, I slept all day long and slept well last night as well. Can't do these all nighters anymore.

 

I'm glad you got some sleep. Lois u I slept pretty good myself last night.

 

Believe it or not, I am ready for a nap now. Of course it extremely hot and we are looking at more thunderstorms for this afternoon, so I'll grab some z's while that's going on.

 

Saw heart doctor this week, did Ekg , was good. He took me off two meds but added 20 mg of Lipator because of cholesterol . Lolol because it's been much higher than he knows, and dobubt will help me since I am blocked up like a dam.
Go back in months unless problems.
After three years had eye exam today. Because of the Predisone I am on catracts are worse and will continue to worsen . She said don't spend alot of money on glasses as your eyes will only worsen. Least she is honest I like that .
Said I might need surgery in three years.
I told her if by chance I was even here in three years..we will talk then.
Still fighting the hands and arms, but the braces do help. Just found by accident on FB a group that have the same disease as myself..their info could be helpful.
Oher wise I am still doing pretty good for an ole hefer

 

Gloria, do they really think it will take another 3 yrs. for this cataracts to come to full bloom? Mine moved along lickety split. But, we're all different of course.

 

She was just guessing. Said because of the medicine could be faster.
Doesn't matter really, just going to enjoy myself best as possible, while I can.

 

Have been laying low last few days.BP went crazy so doctor had me double up on meds. Not happy about it but no choice.
I think one reason it runs high is the pressure this disease puts on my hands arms. My veins bulge up even..
Anyway is scary at times
When I go next Thursday to see Rhumy. doctor I have many questions.
Like why isn't the increased dosage helping yet? The increase has kept me from sleeping, have loss of taste etc etc.
Was over whelmined the other day and lost it ..I said the GD word and thru a fit! Who does that at this age? Was not me at all. Anyways I am better or will be once BP is better.

 

Sorry you are having a bad time of it, Gloria. I know how frustrated you must feel. Hang in there and hopefully your rheumatologist will be able to help.

 

So sad to hear this Gloria, thought things were looking much better
Positive thoughts coming your way and for a good result on Thursday xx

 

Thank you all for concern. I am not looking for sympathy just informing of my journey with this disease.
Like all medicine, it may take away many things but also contributes too many more. I now have thrush in my mouth, part of the reason no real food taste.
And moon face.I consider myself very blessed even with all that I am going through- I am better off than many on this forum and try to remember that daily.
I am cutting my dose to 50 MG on the Presidone(may misspell this)
At least until next week when I see doctor.
In hope it helps some. Think just to strong.
I refuse to take more than 60 mg...as it has not helped the hands or arms in 60 days or more. Yet within days if taking 40 I was all but healed of the other issues.
We will see what happens